Book: Hydrocephalus: A Guide for Patients, Families & Friends (Patient Centered Guides)
Hydrocephalus, often referred to as "water on the brain," is a potentially life-threatening condition that affects one in a thousand babies born in the U.S. Hydrocephalus is now generally treated with surgical placement of a shunt system that drains excess fluid around the brain to another part of the body where it can be absorbed.
As the child grows, shunt revision surgeries are often necessary. Adults with hydrocephalus can be prone to shunt failures or other changes that necessitate subsequent surgeries. Lifestyle choices or pregnancy can strongly impact fluid pressure and health.
Authors Chuck Toporek and Kellie Robinson have lived with hydrocephalus for years and have interviewed neurosurgeons, patient advocates, and families living with the condition.
Hydrocephalus: A Guide for Patients, Families & Friends informs patient and family so that you can:
Select a skilled neurosurgeon
Understand what treatments are being proposed
Participate more fully in your care
Know what you can expect during and after surgery
Know symptoms needing attention
Know where to turn for support
Keep records helpful for future diagnostic or surgical work
Families who read this book will encounter medical facts clearly explained, advice to ease their daily life, and tools for patient advocacy.